Down syndrome

When I first realized I was going be a mother to a little girl with Down syndrome, I immediately hit the internet. I was overwhelmed by the amount of materials available. Everything sounded so scary and intimidating, and I wasn’t quite sure if I was going to be able to handle it all. I took it in little by little though. I started piecing together what to expect, which can be followed through these blog posts.

As I briefly touched on in the “About this Blog” page, my overall goal in writing this blog is to provide information and increase awareness about Down syndrome. Since this world is very new to me, I have found the easiest way for me to learn myself is by teaching others.

The most important thing I have learned thus far about Down syndrome so far is that a child with DS is a child above all else. My daughter will be perfect. She will be normal. She will just be different, and different is not bad.

To see my posts related to Down syndrome, please click here or navigate from the "Categories" link in the sidebar.

I will do my best to answer any questions, and I welcome all advice from those who may have experienced what I am going through. Please check out the links below to websites that may be of interests.

Some great resources to check out:


National Down Syndrom Society
The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. The NDSS envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued members of welcoming communities.


Down Syndrome Pregnancy
Down Syndrome Pregnancy, Inc. is a New Jersey charitable corporation which provides information and support to expectant parents preparing for the birth of a baby with Down syndrome. All of our materials are geared to non-political, honest, compassionate and informative support for those in post-diagnosis pregnancy or waiting until birth for a confirmed diagnosis.


Gigi's Playhouse
GiGi’s Playhouse centers are educational centers with the mission to increase positive awareness of Down syndrome through national campaigns, educational programs, and by empowering individuals with Down syndrome, their families and the community. Programs are free to families and are therapeutic in nature. Each of them are designed to work on specific skill development in several areas including speech and language, social development, and fine and gross motor skills.


The Down Syndrome Association of Charlotte
The DSAC is a non-profit, family support organization.The goal of the DSAC and it's families is to enable individuals with Down syndrome (Ds) to reach their full potential and become respected members of their community. The mission is to enhance the quality of life for all individuals with Ds by providing information and support to families, professionals and the community through educational and social activities.


Noah's Dad
A blog about a family raising their son who wasunexpectedly born with Down syndrome. Rick (Noah's dad) writes, "That’s what NoahsDad.com is about. A window for you to see hope, encouragement, and normalcy. Everyday I will be posting a one minute video called Noah’s Minute. These short videos are meant to give you a glimpse into the life of a family raising a son that was born with Down Syndrome. My hope is that being making some of the unknown, known; the unknown becomes less scary for you. My hope is that by subscribing and watching the daily one minute videos that you’ll see our life is much more normal then “un-normal.”







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